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There has been growing awareness of the need to carefully respect the wishes of individuals at the end of life; however, a population that is often overlooked in this area is aging adults with intellectual and/or developmental disabilities.
This month’s E-News Exclusive reports on a recent study from the University of Buffalo School of Social Work of this group examining the perspectives of emergency medical services providers. The study explored organizational barriers, autonomy issues, and ethical questions that surfaced in their research. Read about the concerns that social workers and medical professionals should be aware of when working with this vulnerable population.
We welcome your comments at SWTeditor@gvpub.com. Visit our website, including our new Peer Perspectives section, at www.SocialWorkToday.com; like our Facebook page; and follow us on Twitter.
— Marianne Mallon, editor |
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End-of-Life Care for Aging Adults With Intellectual and/or Developmental Disabilities
By Anna Panzo, MSW, LCSW
One of the advantages of modern medicine is the ever-evolving improvement in health care and medical treatments. With these advances, many people are living longer and healthier lives, and consequently, the population of older adults around the world is increasing. Medical improvements have prolonged life expectancy not only for the general population but also for aging adults living with intellectual and/or developmental disabilities (IDDs).
As the overall number of older adults around the world and in the United States rapidly grows, more attention is being given to end-of-life care for aging people. Regardless of an individual’s circumstances, end-of-life care requires sensitivity, compassion, and a respect for life, dignity, and autonomy. However, for aging adults living with IDDs, end-of-life care can become even more nuanced and complex.
Research
Three individuals at the University of Buffalo explored some of these nuances and complexities through researching the perspective of emergency medical services (EMS) providers. The study was a collaboration among Deborah Waldrop, PhD, a professor and associate dean for faculty development at the School of Social Work; Jacqueline McGinley, MSW, a PhD candidate at the School of Social Work; and Brian Clemency, DO, MBA, FACEP, FAEMS, an associate professor and director of the EMS fellowship program at the Jacobs School of Medicine and Biomedical Sciences. Waldrop, McGinley, and Clemency specifically explored the perspectives of EMS providers who responded to emergency calls for aging adults with IDDs who had a terminal illness. In March 2017, the Journal of Applied Research in Intellectual Disabilities published their study, “Emergency Medical Services Providers’ Perspective on End-of-Life Decision Making for People With Intellectual Disabilities.”
Full Story » |
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