Research Review

New Data Shows One-Half of Children With ASD Wander, Bolt

The Interactive Autism Network (IAN), the nation’s largest online autism research project, has revealed the preliminary results of the first major survey on wandering and elopement among individuals with autism spectrum disorders (ASD), and announced the launch of a new research survey on the association between pregnancy factors and ASD. The wandering and elopement survey found that approximately one-half of parents of children with autism report that their child elopes, with the behavior peaking at age four. Among these families, nearly 50% say that their child went missing long enough to cause significant concern about safety.

In just three weeks, more than 800 parents of children with autism completed the survey. The findings highlighted below summarize the compelling results and crucial safety concerns identified by parents. For the preliminary findings in their entirety, read “IAN Research Report: Elopement and Wandering.”

The survey found the following:

• More than one-third of children who elope are never or rarely able to communicate their name, address, or phone number verbally or by writing/typing;
• two in three parents report their missing children had a “close call” with a traffic injury; and
• 32% of parents report a “close call” with a possible drowning.

• Wandering was ranked among the most stressful ASD behaviors by 58% of parents of elopers;
• 62% of families of children who elope were prevented from attending/enjoying activities outside the home due to fear of wandering;
• 40% of parents had suffered sleep disruption due to fear of elopement; and
• children with ASD are eight times more likely to elope between the ages of 7 and 10 than their typically-developing siblings.

• One-half of families with elopers report they had never received advice or guidance about elopement from a professional;
• only 19% had received such support from a psychologist or mental health professional; and
• only 14% had received guidance from their pediatrician or another physician.

Despite speculation that summer is the peak season for elopement, 67% of parents of elopers said they saw no seasonal pattern at all; only 25% felt summer was the peak season. The top 5 reasons parents believed their children eloped included: enjoys exploring (54%); heads for a favorite place (36%); escapes demands/anxieties (33%); pursues special topic (31%); and escapes sensory discomfort (27%).

After further analysis of the data the IAN Project will publish additional findings, such as how children with ASD who wander differ from children with ASD who do not, the financial and emotional burden on parents, and the steps parents take to prevent elopement.

— Source: Kennedy Krieger Institute